Lessons from Kephart: Labels, Definitions, Language

by Jerry Waxler

When Beth Kephart’s son was diagnosed with a vague “disorder” she had to cope with the news. But how do you make sense of information that affects people you love when it is so technical you can barely understand it? You must sort out more than jargon. This is your son, and you must take into account the leanings of your heart. Later, returning to the scene as a memoir writer, you must search for words that will convey these emotional, and sometimes even philosophical struggles. To help you sort out your own story, consider the way Beth Kephart tells hers.

Technical Definition Informs the Story

After many exams and interviews, Jeremy received his diagnosis. He had “Pervasive Developmental Disorder Not Otherwise Specified. (PDDNOS)” Such an obscure, clinical sounding term might seem out of place in a memoir about a child. But Kephart includes it, and even quotes the exact definition in the psychiatric manual, DSM III.

This critical technical diagnosis is so important in the lives of Beth and Jeremy Kephart that the book could have been subtitled, “My son’s PDDNOS, and what I did about it.” I’m glad she didn’t shy away from this technical detail. Now I know one more piece of her puzzle, and if I meet a child afflicted with this condition, I’m better informed.

Writing Prompt
Perhaps at first glance, the technical details of your situation might seem obscure and unimportant to anyone but you. But sometimes, these nonfiction tidbits can be valuable additions that help readers understand you and your world. Perhaps you garden and you worry about the chemical makeup of the soil, or you are a birdwatcher and you had an interaction with a wonderful creature. If it was important to you, it could be important to us. Consider sharing the technical name or description.

Philosophy of everyday life: “I will not confuse my son with a label.”

Sometimes a diagnosis helps you find a treatment. If you know you have appendicitis, you can switch from antacids to surgery. But sometimes a diagnosis confines you in a prison without a door. This is why Beth Kephart rails against the diagnosis “PDDNOS” being applied to her son. She refuses to be limited by this strange-sounding label.

“All those labels? Which one is the one? Which one fits? I turn and look at Jeremy and his radiant beauty, try to side with one or the other of the decrees. All I see is his giftedness, his otherworldly qualities, how even in the fit of a dream, he’s reached for me, grabbed my finger with his hand. I see his black hair and his feathered eyelids and I am reminded about acts of mercy, how God sent him, this saintly creature, into the clutter of my home. As if I deserved anything nearly this gorgeous. As if I would know what to do when he arrived.”

In a sense this is the core of her entire memoir. She strives at every step to see him as a unique, elaborate being, not a simple category. Throughout the book she seems to be making the case that love transcends labels, that when you love someone you see their individuality.

Weirdly, this exact point is what makes memoirs so powerful. Memoirs go deep inside the individual uniqueness of their author’s life. Every memoir is the author’s attempt to transcend labels, and to elaborate on the scope of an entire, complex, unique human being.

Writing Prompt
What label has cornered you, or someone you love? Show a scene in which the label hurt you, and show how you fought against that limitation.

In the next post, I will offer the last of my list of 20 lessons based on “Slant of Sun.”

Links
Visit Beth Kephart’s Blog
Amazon page for “A Slant of Sun: One Child’s Courage” by Beth Kephart

Here are links to all the parts of my multi-part review of “Slant of Sun” by Beth Kephart and an interview with the author:

Use this memoir as a study guide: lessons 1 to 3

Lessons 4-5 from Beth Kephart’s Memoir, Slant of Sun

Four More Writing Lessons from Reading a Memoir

Memoir Lessons: Mysteries of emerging consciousness

Memoir Lessons: Moms, Quirks, Choices

Lessons from Kephart: Labels, Definitions, Language

Memoir Lessons: Buddies, Endings, and Beyond

Interview with Beth Kephart

More memoir writing resources

To see brief descriptions and links to all the essays on Memory Writers Network, click here.

To order my step-by-step how-to guide to write your memoir, click here.

Memoir Lessons: Moms, Quirks, Choices

by Jerry Waxler

Mothers supposedly have instincts that tell them exactly how to raise their child. But we all know situations in which the child presents problems that exceed the mother’s grasp. At what moment does she decide that her own resources are not sufficient? It’s a profound question I would have never considered before reading this memoir, about the author’s search for insight, search for help. Here are three more lessons about memoir writing, in my series of 20 that I learned from “Slant of Sun” by Beth Kephart.

Intimate look at a mother’s relationship with child psychology (non-fiction bonus)

Child psychologists are the ones in our society who offer training and expertise, and so, when pushed to the limit, Beth Kephart goes to ask them to help. And yet, she resists them, afraid they may try to bring a cold clinical analysis to her precious individual baby. In scenes filled with suspense and compassion, she explains her situation to the psychologist. What a beautiful, loving compassionate scene she portrays about a mother’s worry and fretting about these difficulties mothers face when seeking help.

This is not just cold clinical material. This is personal and intimate. When Kephart takes Jeremy for psychological testing she tries to protect him from the psychologists. Then she wants to coach the testers to let them know that he is not just any ordinary boy. Her desires, fears and other details of the visits can help other moms in the situation. In fact, Slant of Sun could be a mini-handbook about what to do if your child needs psychological help.

Writing Prompt
I have read books about the anxiety people face when waiting for heart surgery. (Hands Across my Heart by Perry Foster. The wall between mother and baby during post-partum depression (Down Came the Rain, by Brooke Shields), and the life and death battle against breast cancer (Sky begins at your Feet Caryn Mirriam-Goldberg, and Healing with Words by Diana Raab). By sharing  emotional and technical details, these books offer strength and instruction to readers. What non-fiction bonus information from your life experience might benefit your readers? You might think your experience was mundane, but by writing about it in detail, you can help people understand what you were going through and offer them strength to face their own situations.

Surprising variety of inner worlds

Over the last few years, there is an increasing understanding that disorders related to Autism come in degrees. Many symptoms now fall under the broad umbrella of “The Spectrum.” People on the Spectrum tend to hyperfocus on tasks. They have a hard time letting go of their fascination with thoughts and mental images. In extreme case, these tendencies are anti-social, making it difficult for these people to form relationships or work in organizations. In milder cases, or when a person has learned how to direct their attention, these qualities can be valuable. Successful artists, scientists, and business people are able to focus intensely and ignore distractions.

“Slant of Sun” offers a wonderful, warm glimpse into the early childhood of a boy who is on the Spectrum, offering an example of the surprising variations that can take place in people with these traits.

Writing Prompt
The way we think is uniquely our own, and a memoir is a perfect opportunity to explore the unique aspects of yourself that play out inside your own mind. Consider ways your thought process differs from other people. Obviously you have no direct evidence, but over the course of years, you have heard hints that you are more or less competitive, more or less artistic, more or less obsessive, and so on. By paying attention to these differences, you can offer a portrayal of your character that will let your readers see you as individual and unique.

Search for a special school

When Beth needed to find the right school for her child, her hunt was more than casual. It was crucial for her son’s future. She researched. She asked friends and acquaintances for recommendations. Her account gives an in-depth look at interviewing school officials, letting us feel their attitude towards children with special needs.

Kephart’s urgent search for a specialized school could be generalized to a broader set of circumstances. Finding the right school is an important milestone on many journeys. When we look for the right college, or camp, or job, or therapist, we are lining up forces that will influence our future. After we enter that particular the situation, we will be governed by its rules and rulers. To influence our future, we have a great responsibility to effectively evaluate the institution we’re heading towards.

Writing Prompt
What sort of search have you conducted in order to locate and accepted by the “right” school, mentor, or training situation?

In following blog posts I will continue the list of lessons that I drew from “Slant of Sun” and suggestions for you, as well.

Links
Visit Beth Kephart’s Blog
Amazon page for “A Slant of Sun: One Child’s Courage” by Beth Kephart

Here are links to all the parts of my multi-part review of “Slant of Sun” by Beth Kephart and an interview with the author:

Use this memoir as a study guide: lessons 1 to 3

Lessons 4-5 from Beth Kephart’s Memoir, Slant of Sun

Four More Writing Lessons from Reading a Memoir

Memoir Lessons: Mysteries of emerging consciousness

Memoir Lessons: Moms, Quirks, Choices

Lessons from Kephart: Labels, Definitions, Language

Memoir Lessons: Buddies, Endings, and Beyond

Interview with Beth Kephart

More memoir writing resources

To see brief descriptions and links to all the essays on Memory Writers Network, click here.

To order my step-by-step how-to guide to write your memoir, click here.