A Practical Philosophy of Love Revealed in this Memoir

by Jerry Waxler

Author of Memoir Revolution: a guide to memoirs, including yours.

Martha Stettinius’ memoir, Inside the Dementia Epidemic, took me on a journey in which the author had to fulfill her new role as primary caregiver. By the time I closed the book, I felt inspired and hopeful. How could a book about Alzheimer’s have that effect? Clearly she wasn’t promising that Alzheimer’s would be cured. I wondered for months how to explain the effect the book had on me. What is it about her storytelling that could possibly convert the gritty realities of a failing mind into a reason for people of good will to band together and generate hope?

Based on these considerations, I offer four philosophical conclusions. Two of them are embedded in the book itself, and two of them arise from the very fact that the book exists.

Practical Philosophy Point #1: This is still the person I love
I watched my own mother drift in and out of dementia in the last weeks of her life. Even when her words were scrambled, she was still “there” somewhere. Because the experiences were brief, I did not need to dig within myself for a deeper understanding. I just rode through each episode, never doubting our connection.

In Inside the Dementia Epidemic the downward slide took place over a much longer period, forcing this daughter to come to terms with the notion of a person who exists on the other side of a cognitive divide. In her memoir, she painstakingly traces her own path from confusion to effort and hope. To maintain her own dignity as well as her mother’s, Stettinius focuses on the love between them.

She slows down to adapt to her mother’s new speed, and allows us to slow down with her. At this more intimate pace, she discovers a heartfelt connection, unencumbered by former, edgy patterns. By relying on this core of love, the memoir offers a perspective of the self that is deeper than the one visible on the surface. Despite her mother’s weakened cognitive ability, their relationship continues to evolve.

During Stettinius’ journey, we travel with the two women along a path toward gradually increasing wisdom about contact, mutual respect and love.

Practical Philosophy Point #2: Social support is the highest good
When I was growing up, I mocked the schmaltzy song lyrics, “people who need people are the luckiest people in the world.” My power came from pure knowledge. I never questioned the wisdom of this self-reliant philosophy until it pushed me into such severe loneliness I thought I was losing my mind.

To escape my isolation, I was forced to reach out for help. When I did so, a few caring souls noticed my need and reached back. The nurturing of friends and supporters ushered me into a much more satisfying version of adult life. My appreciation for interdependence continues to deepen.

Hillary Clinton’s book It Takes a Village to Raise a Child brought attention to our shared responsibility toward children. My disastrous experiment to grow up without social support revealed that it takes a village to raise a young adult. Over the middle decades of my life, I gained an ever-increasing appreciation for the importance of the village throughout adulthood, embracing the fact that our relationships are crucial for moral, mental, and emotional survival.

Early in my memoir-reading journey, I came upon an author who spent a lifetime trying to find words to explain this need humans have for each other. In her memoir Here If You Need Me, Kate Braestrup loses her husband in a freak accident and must raise her children without him. To support her family, she becomes a police chaplain, a job that requires her to console people after crime, accidents and other suffering. In her darkest hour, she recognizes that the support people pour out to each other is the crucial ingredient, the antidote to evil. Through her eyes, social support is the highest moral achievement. (See my article here)

And now, in Inside the Dementia Epidemic, Martha Stettinius shows how the village plays a crucial role in aging. To care for her mother, she needed an army of helpers. By highlighting the caregivers who participated in her mother’s care, the book lifts us out of isolation and into the support of the community.

In my next post, I offer two more practical philosophy points that I derive from the book Inside the Dementia Epidemic.

Notes

Martha Stettinius’ home page

Inside the Dementia Epidemic on Amazon

For brief descriptions and links to all the posts on Memory Writers Network, click here.

To order my book Memoir Revolution about the powerful trend to create, connect, and learn, see the Amazon page for eBook or Paperback.

Order my step-by-step how-to guide to write your memoir, click here.

The powerful story of an ordinary woman

by Jerry Waxler

I first met Linda Wisniewski seven years ago at a critique group in Doylestown, PA. Within a few months she announced that one of her essays was going to be broadcast on her local public radio station. I was impressed by her accomplishment, proud to know the author of one of these radio essays. She left the group, and later I heard from a friend that Linda was teaching a course in memoir writing at the Bucks County Community College. Recently, I saw her again, at the Moravian Book Shop in Bethlehem, Pennsylvania autographing copies of her memoir, “Off Kilter.” Thanks to her persistent passion for telling her story, I can read her book and ponder the gifts her life has now offered me.

The crisis that drives the book is the author’s relationship to her mother. As Mom slipped towards dementia, their relationship became strained. Mom struggled inconsistently, sometimes accepting her fate and other times bitterly afraid of going into a nursing home. During this disturbing reversal of roles, when a child must care for her parent, problems that have been buried for a lifetime bubble to the surface.

Naturally, Mom raised Linda to be a good girl. The problem was that Mom’s idea of a “good girl” was fashioned from an older world, when girls were supposed to stay invisible and do what they were told. Linda didn’t want to follow this training. She wanted to expand towards the freedom of an American woman in the Twentieth Century. These two opposing views of a woman’s role played out in a million homes, as daughters tried to find their identity in a world drastically different from the one their mothers were trying to teach. The resulting schisms were buried for decades under layers of politeness and other charades.

With Mom’s strength failing, and Linda thinking it was time for a nursing home, the stress reaches a crescendo, and Mom explodes, “You’ve made a mess of my life.” This attack jumped out at me. What a hurtful thing to say! I wondered what the “mess” was. My first interpretation was that Mom was looking for a handy target to blame for the downward slide of old age. Then I realized that Linda’s development as a proud, independent woman did create a mess. It messed up her mother’s goal of raising a submissive daughter.

Mom’s outburst makes me wonder what other hurtful things she said to her daughter through the years. Since Mom has been teaching her daughter the importance of being passive, it seems surprising that she would use such an aggressive outburst. And again, putting myself in Linda’s shoes, I saw another lesson embedded in Mom’s behavior. That is, if you want to manipulate another person, then cause them pain.

Psychology lessons from Off Kilter

When I was in graduate school, I took a course called “Assertiveness.” I had always assumed the assertiveness meant “pushy,” so I was surprised by how much insight the word contained. The professor explained it this way.

When you need something from another person, such as love, or privacy, you must communicate. Consider these two approaches. One option is to express your needs in words, using simple statements to help the other person understand what you are feeling. This style of communication called “assertiveness” leaves people feeling good about themselves and draws them closer to each other. The other option is to convey your displeasure by causing the other person pain, in effect punishing them for not giving you what you wanted. The pain causes the other person to pull away, resulting in isolation. Or else the hurt one fights back, creating a sickening embrace of attack and counter-attack.

Through the years since I took the class, I have often seen this dynamic play out in the behavior of individuals and nations, sometimes using aggression to cause pain, and other times using clear communication to reduce pain and enhance mutual understanding. But seldom have I seen it represented with more exquisite insight than in Linda Wisniewski’s tale of trying to help her mother.

I am not my mother

When Mom lashes out, it would be tempting for Linda to draw on her childhood training and respond in the way her mother taught her. Her choices were limited. She could either become aggressive, like her mother, and lash back. Or she could remain quiet, becoming the victim. Of course, neither course is desirable. The high road was to break away and strive towards clear, patient communication. Linda beautifully portrays the power of these difficult choices, as she tries to respect and love her mother, while not “becoming” her mother.

Lifelong process in this adult Coming of Age story

Using flashbacks, Linda shows her journey from child to adult, striking upward like a climber on a hard scrabble mountain. During the climb she was too young and too caught up in the process of growing to be able to step back and understand her family dynamics. As a result, she entered adulthood with unresolved issues. Now, as Mom is growing old, they struggle for warmth amidst their interpersonal tensions. At first, a cloud of doubt descends upon me, making me feel pessimistic about the possibility of love in such a situation.

As I ponder the memoir Off Kilter, I find another dimension that offers me uplifting hope and optimism. By writing her story, Linda has performed a remarkable service to herself and her readers. She has broken the code of silence, and exposed her family dynamics to the world, where we can all compare notes. In a sense, she has taken the high road of assertiveness, not only in her relationship to her mother, but more broadly, as a responsible neighbor and friend. This assertive book can help readers understand her, and by sharing her experience, she helps us understand ourselves.

Links

“Off Kilter: A Woman’s Journey to Peace with Scoliosis, Her Mother, and Her Polish Heritage”  by Linda Wisniewski
Linda Wisniewski’s Home Page
Amazon Link for Off Kilter
For another book about a daughter caring for her mother, see Carol O’Dell’s Mothering Mother
To read my essay about Mothering Mother, click here.