Posts Tagged ‘Aging’

Help my aging dad tell his story

Monday, January 28th, 2008

I received this question in a comment yesterday, and it is so rich in the story of the human condition I am bringing it forward and answering it in this post.  It was posted by Judy as a comment on my blog Be Here Now by Writing.

Dear Jerry,

My Dad is 89 years old. My Mom is in a nursing home with advanced Alzheimer’s, and he is in assisted living where they were together until recently. He is terribly depressed, since this is virtually their first time apart in 63 years, but the one thing that can still light him up is his stories. If I give him a cue, he will be off and running. He used to write many of his stories at a writers’ group my mom organized for many years, and I have some of these stories. My husband and I have been transcribing them and reading them to him, and he loves this.

He was invited to present one of them at a story writing workshop at Assisted Living, but since he is nearly blind, he couldn’t read it. The Activities Director offered to read it for him (a particularly wonderful, emotional story) and he said okay, but it was devastating for him. It turned out that he had rehearsed the story many times in his head in order to be able to tell it eloquently. When she read his words, he was terribly upset, even though he had agreed.

What do you think should be done with his stories? He has a zillion of them in his head and as I’m writing to you, I’m thinking that maybe we need to create an index of them so that when someone says the title or word, he can then tell the story. It seems to give him back a big part of himself. The story that was read this weekend was called “Silent Conversation” and it was about an incident that occurred years ago with my daughter who was about 9 at the time. It was a gorgeous story. Any advice or input regarding how to use his stories to light him up would be greatly appreciated.

Judy

Hi Judy,

Thanks for sharing this rich story, filled with emotion and the drama of the human condition. That’s the magic of stories. Even in your tiny comment, I feel like I know him and you. How lovely that you have found the pleasure he gets from tapping into his stories. That’s awesome! And he has a little built in audience in the story writing workshop that his own wife created. That is so poetic I’m getting goosebumps.

Your tiny story paints a powerful picture. He wanted to be the one to tell the story. There’s a buzzword for this desire. It’s called “communalization” and is typically used for recovering from trauma. I think it also applies to aging people who feel isolated in their experience. He wants to communalize his experience by sharing it with others. We are social animals and the story helps draw us together at any age.

He isn’t losing his functioning to remember his stories. And it sounds like with all that rehearsing he has the passion for telling them well. So the solution is simple, and you sort of present it yourself. Let him do the talking. So what if it’s not told in the exact same words as it was originally written? What it loses in polish it will gain in spontaneity. And because he is doing the talking, it will make him feel understood and heard.

I wasn’t quite sure if he also wants to record more, or if he would be content with repeating the stories you already have. In either case, you could improve the situation with some technology. Buy him a digital recorder (these little devices have become really powerful and convenient). He can record the story over and over until he gets it right. Then you can copy it to an iPod and he or anyone can play them on demand. (I’d be happy to tell you a little more about the technical issues if you want.) Or you and your husband could read his written stories into a tape recorder so he could listen to them. Or train Dragon Naturally Speaking to transcribe them into text. All these technologies are cheap and straightforward.

The missing ingredient for many people is the availability of a helpful support team. But he has that. Not only does he have the life writing group at his assisted living facility. He also has loving children who are interested in his story telling and searching for ways to help him.

Sincerely,

Jerry Waxler

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Memoir about Caregiving for Mother offers lessons for life

Thursday, August 23rd, 2007

by Jerry Waxler

According to caregiver.org 50 million people in North America are informally caring for the elderly while 8.9 million of those caregivers face the added burden of Alzheimer’s and other forms of dementia. Carol O’Dell, author of the memoir “Mothering Mother” was one of those people. Not only was her mother no longer able to care for herself. She had literally lost her mind.

There is nothing pretty about the helplessness of aging, but unless our parents and everyone we love die fast and young, at some point we can no longer push aside the recognition that aging happens. One way to prepare for that realization is by learning about the experiences of those who have gone before us. Through such lessons as offered by the memoir “Mothering Mother,” we gradually do the emotional and spiritual work to accept the variety of stages of our lifetime journey.

O’Dell built a room onto her house and invited her mother to live with her family. By becoming her mother’s primary caregiver, O’Dell immersed herself more deeply into caregiving than she anticipated. She had to set herself aside, the way a mother sets herself aside to care for a newborn. But this was no cuddly infant. This was her mother, lost in forgetting so profound, she not only forgot the past. She forgot how to be human. It’s like a horror movie in which some evil force has stolen the person’s true self, leaving behind the shell.

O’Dell didn’t have the choice to send her mother to a care facility. For one thing, she and her husband were concerned that they could not financially afford to get adequate care for her mother. For another thing, O’Dell had promised her mother  she would care for her at home.

There were times the strain was so severe she felt she was losing her own mind. Her experience was consuming, draining, demoralizing, overwhelming, even traumatic. Her memoir gives me a powerful glimpse into her emotionally complex situation. And she does it without overwhelming me. I found myself wanting to know more and actually raced along to see what would happen next.

One of the reasons I wanted to know more about her experience was to try to understand how she coped. If she could cope with this situation then there is hope for humanity. And in fact, she did exactly that. She cared for her aging, failing mother to the best of her ability and in the process earned my respect. Her ordinary life gave her the material to inform millions of people what that experience was like. While O’Dell’s experience seems overwhelming, by sharing it with us, she also shares some of the strength and sanity she gained by immersing herself so deeply into the final throes of her mother’s life.

Writing a memoir is exactly the opposite of the mental deterioration of dementia. By writing a story about taking care of someone with Alzheimer’s, O’Dell was exercising that part of her brain, the prefrontal cortex, that distinguishes humans from the other creatures on the planet. The very act of writing helps the writer cope, and once the story is written, it can be reread, reorganized, and shared. This organizational ability of the brain is the basis for much of what we consider sane and sacred about being human. While Carol O’Dell can’t erase her mother’s suffering or her own, she can write about it, choosing her words and phrases and images. These simple tools let her organize events into a story. And through this process she can reclaim some of the humanity that was lost and offer it to us as a gift.

More memoir writing resources

To see brief descriptions and links to all the essays on Memory Writers Network, click here.

To order my step-by-step how-to guide to write your memoir, click here.

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Write to celebrate midlife crisis

Thursday, August 16th, 2007

by Jerry Waxler

A lot of people over 50 look down the road and spot what looks suspiciously like a finish line. We pause, ask a few questions and then shop for a sports car, an RV, or an affair. But after we pay for our fling we usually have more questions than when we started. For a more lasting solution, try writing your memoir. Yes, I know it doesn’t sound as glamorous as some of the more expensive responses to midlife but it turns out to be far more satisfying.

By finding the stories of our life we reclaim the adventure, the romance, and the mystery we’ve already lived through. When we put our youthful indiscretions on paper we gain insights not only about who we were then but who we are now. Rediscovering our youth, we see how our actions fit in the grander scheme of things. And we no longer take youth for granted. We savor it. This second look lets us endow youth with wisdom.

To understand how writing might work in your life, consider my mother. Starting from her 70′s, she woke early every morning and for the first hour or two of the day, she wrote. She wrote letters to old friends. She wrote notes about her past. She prepared talks to present to the clubs she belonged to. Occasionally she found a book she thought would interest her peers. The manager in her apartment campus posted a notice that Sylvia Waxler was giving a book review, and people showed up to listen. After staging a few such events, she became known as the book review lady. Strangers and acquaintances stopped her in the lobby to discuss her last review, and tell her about a book they were reading and why she might like it. They showered her with friendliness. She turned out to be one of the best liked 87 year old women I have ever had the privilege of knowing.

But it seems I have digressed. What does an 87 year old lady writing book reviews have to do with someone much younger trying to find a renewed sense of life? I think by writing every day Mom found the fountain of youth. And her audience knew it. They weren’t pouring admiration on her because she gave the best book review they ever heard. As she pried into the meaning of books, and then reached out to an audience to share her ideas, she was creating the story of an old woman who kept going. She wasn’t telling them what to do. She was showing them what one person could do. Her story gave them hope.

It turns out that stories are the only tool we humans have for understanding life’s trajectory. So if you want to enhance your experience of being you, haul your memories out of storage, line them up, and organize them. The mishmash of events falls into place. Armed with this organized view of your life, you begin to appreciate its form. By seeing where you’ve been, you open up to the possibilities of where you are going.

I can’t explain exactly how writing will help you feel better about your life journey, since you will approach it in your own unique way. But here’s how it has worked for me. After writing for a while, I realize I’m in the thick of my own vibrant story. Life becomes more engaging. Now, my curiosity propels me forward, and as I look down the road I see glimpses of the next chapter in this fascinating journey.

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Boomer memoir is a step towards social activism

Saturday, June 23rd, 2007

by Jerry Waxler

Terrorism! Melting ice caps! Another traffic jam! When is someone going to do something about this mess? While I am waiting for “them” to change the world, “they” are waiting for me. It’s time to break this impasse by taking action. But how? I already tried to bring about world peace by disrupting a campus when I was in college in 1968. It was scary confronting a mob of police, and I don’t believe the world has become more peaceful as a result of those actions. Now that I’m older, I’m looking for better methods. I recently became inspired by a talk hosted by the “Coming of Age” organization in Philadelphia. The main speaker was the CEO of AARP, Bill Novelli, who echoed the sentiment of his book, 50+: Igniting a Revolution to Reinvent America in which he claimed that I can join an army of new oldsters to help move the world in a positive direction. A week later I went to another Coming of Age event and heard similar ideas eloquently delivered by Marc Freedman, author of Prime Time: How Baby Boomers Will Revolutionize Retirement and Transform America.

When I was a kid, I thought that older people were the problem. They seemed so invested in the status quo. Now that I’m one of them, I find old people aren’t so bad after all. In fact, I feel just as passionate about changing the world as when I was 20. While Novelli and Freedman spoke of a variety of ways that others have chosen to pitch in and move their own little corner of the world, I have a grand idea. It seems to me that the missing element in modern civilization is that we don’t seem to be doing a good job of learning from our mistakes. And in my opinion, that’s where the army of us oldsters can help significantly. We’ve seen the world go by for more years than others have, and have gained an appreciation for what matters in the long run, and what fizzles out.

It’s not that I have all the answers. But if there is any wisdom at all to be gained from experience, and my experience tells me there is, then I’d say we need to communicate more of our life story. And we’ve been born at the perfect time. Just as boomers are reaching “that certain age” technology has provided new opportunities for us to collaborate. The printing press brought ideas from individual minds out into the public, broke us free from a layer of oppression, and opened the way for the Renaissance. The internet makes the printing press look like an old relic. We’re ready to take this thing global, and who knows what rebirths we can bring about?

By developing a community of thinking people who talk about life in an inquiring way, we can learn from each other. Your wisdom is contained in your life experience. Share it with the world! Even if you don’t know how writing could change your world, start writing anyway. Your experience turns into stories that are authentic, in a voice that is authentically yours. That’s all that matters now. Find the authentic voice and share the authentic experience. As you go, you’ll discover the sense you’ve made of your past, and then discover the impact your experience has on others. By writing and organizing your story, without even knowing how, you are already beginning to serve. And like any service to others, you’ll be the first to reap the rewards.

Writing about life will give you more energy. Even if you already have plenty of energy, writing will give you more. And if you are too tired to write, writing will wake you up.

Writing will make you more knowledgeable about how to write and how to tell stories. You can press these enhanced skills into service as you discover things you want to share with the world.

By writing about your own life experience, you open up parts of yourself to others. This makes the world a friendlier, more intimate place to live.

Write for a cause, write for a community, write for posterity, write to share yourself. Write to change the world.

More memoir writing resources

To see brief descriptions and links to all the essays on Memory Writers Network, click here.

To order my short, step-by-step how-to guide to write your memoir, click here.

To learn about my 200 page workbook about overcoming psychological blocks to writing, click here.

Check out the programs and resources at the National Association of Memoir Writers

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Harry Bernstein reveals the Invisible Wall

Friday, April 27th, 2007

by Jerry Waxler

I am reading the Invisible Wall by Harry Bernstein. The reason I heard about this book and decided to read it was because of the buzz that it generated when Bernstein, now 96 years old, wrote this, his first published book when he was 93. That’s a story in itself, and inspiring to anyone who thinks it’s too late. That gives me 36 more years of productive writing ahead of me!! If I get started now, I still have the full span of a career ahead of me. And by the way, Bernstein has recently sold his second book.

So what can I share about memoirs by reading this book? First of all, I ask what makes this memoir tick? It combines two types of memoir: a coming of age story –Harry is just starting school, around 6 years old, and he shares his observations from that tiny perspective as he tries to make sense of the world. And it’s an immigration story. Both of his parents came from the old country, Poland, and moved to England. They are living on a block, an enclave, a sort of ghetto with other Polish Jews on one side of the street. And on the other side of the street are non-Jews. The Invisible Wall of the title is the wall of animosity and suspicion that runs down the center of the street and separates Jew from non-Jew.

When I read the synopsis, about growing up in England in the beginning of the century, and in particular growing up in the cultural tension of this street, I wanted to read more. For some reason which I find fascinating, even though my own grandparents came from Russia, I emotionally feel connected to England as the mother country. I guess it’s all that English literature, King Arthur, Shakespeare, and Charles Dickens. (Did those stories help me define my roots, more even than my own grandparents?) So I’m drawn to read this story to learn more about another generation of Jews being indoctrinated in the culture of the mother country.

Within the book, I find an interesting surprise. The author shows me both sides of the wall. Of course I see the fear of the children, as they walk to school terrified that they will be beat up by anti-semitic bullies. That’s the side of the wall one expects in a book that contains anti-semitism. But inside the home, I get to see the other side. Like Maria in West Side Story, when a girl from the Jewish side is drawn to a boy on the non-Jewish side, Bernstein shows us his mother’s graphic gut-wrenching fear.

I feel the emotions of the girls, reaching out to boys in the dominant culture with love. And the loathing from the parents, trying to maintain their old culture. It’s a beautiful melting pot story. Like the parents in West Side Story who beg their daughter to “stick with your own kind” Bernstein’s people desperately try to keep the children on the “right” side of the invisible wall. And there are other powerful emotions I identify with in this story. I am terrified and disgusted when I hear Harry’s father come into the house, abusive and drunk. I am anxious and hopeful when his mother figures out a way to make some money on her own.

So here is the magic of how the memoir draws in a reader. I see the world from the protagonist’s eyes. I want him to survive. I want his pain to be resolved. And he lets me get inside these emotions by showing them openly. It’s hard to write so boldly about one’s own raw emotions. I know it how hard it is for me. I suspect that Bernstein’s many decades gave him enough distance from the intensity, so he was able to see the emotions more clearly. So there’s another lesson I can take away from reading this book. Not only do I still have time. But as I grow older, my perspective of my life grows more interesting and deeper.

Note
For my essay about Harry Bernstein’s second memoir, The Dream, click here.

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Never too late. Harry Bernstein’s first Memoir at 93!

Monday, April 2nd, 2007

by Jerry Waxler

I was wrong. You can wait before writing your memoir. Author Harry Bernstein started his first memoir when he was 93, and it’s just coming out now that he’s 96. This is great news for anyone who thinks it’s too late, or they are too lonely or tired. There’s plenty of time.

In fact, there are several benefits of writing your memoir later in life:

  • The world is changing so fast that your memories from a few decades ago seem like you’re telling about a foreign land. This adds a flavor of distinction to your memories, without you needing to do anything fantastic.
  • Long term memory is the most persistent. As we age, our short term memory becomes more difficult but longer term memory persists. You can find all sorts of memories lurking in there once you start looking, at any age.
  • Because you’ve been alive lots of years, you can see the way events unfold across decades. This ability to see the long view adds a sense of wisdom and continuity to your perspective that younger people can only get from books – such as the one you write.
  • You have time.

Bernstein already has a contract for his second book. And that’s the reason his story popped into my mind. I was sitting at my desk thinking how odd it feels not to be working towards a book deadline. I just sent my book “Learn to write your memoir in four weeks” and am thinking about which one of my next projects to focus on. I thought, “Writing books is addictive” and then I remembered this quote from the article about Harry Bernstein.

“Now that he’s got the hang of book writing, Bernstein says he could probably write a few more and is considering writing about his marriage. His second book, “The Dream,” is almost finished and centers on the family’s move to the United States; Ballantine has already signed on as the American publisher.”

I’m also finding, once you get the hang of it, immersing yourself in writing a book is as addictive as immersing yourself in reading one.

The title is “Invisible Wall” about growing up in England a long time ago. I can’t say too much about it yet, because I just ordered it. But when I read it, I’ll share my observations and teaching points in this blog.

Click here to read my article about Invisible Wall.

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