Memoir about Caregiving for Mother offers lessons for life

by Jerry Waxler

According to caregiver.org 50 million people in North America are informally caring for the elderly while 8.9 million of those caregivers face the added burden of Alzheimer’s and other forms of dementia. Carol O’Dell, author of the memoir “Mothering Mother” was one of those people. Not only was her mother no longer able to care for herself. She had literally lost her mind.

There is nothing pretty about the helplessness of aging, but unless our parents and everyone we love die fast and young, at some point we can no longer push aside the recognition that aging happens. One way to prepare for that realization is by learning about the experiences of those who have gone before us. Through such lessons as offered by the memoir “Mothering Mother,” we gradually do the emotional and spiritual work to accept the variety of stages of our lifetime journey.

O’Dell built a room onto her house and invited her mother to live with her family. By becoming her mother’s primary caregiver, O’Dell immersed herself more deeply into caregiving than she anticipated. She had to set herself aside, the way a mother sets herself aside to care for a newborn. But this was no cuddly infant. This was her mother, lost in forgetting so profound, she not only forgot the past. She forgot how to be human. It’s like a horror movie in which some evil force has stolen the person’s true self, leaving behind the shell.

O’Dell didn’t have the choice to send her mother to a care facility. For one thing, she and her husband were concerned that they could not financially afford to get adequate care for her mother. For another thing, O’Dell had promised her mother  she would care for her at home.

There were times the strain was so severe she felt she was losing her own mind. Her experience was consuming, draining, demoralizing, overwhelming, even traumatic. Her memoir gives me a powerful glimpse into her emotionally complex situation. And she does it without overwhelming me. I found myself wanting to know more and actually raced along to see what would happen next.

One of the reasons I wanted to know more about her experience was to try to understand how she coped. If she could cope with this situation then there is hope for humanity. And in fact, she did exactly that. She cared for her aging, failing mother to the best of her ability and in the process earned my respect. Her ordinary life gave her the material to inform millions of people what that experience was like. While O’Dell’s experience seems overwhelming, by sharing it with us, she also shares some of the strength and sanity she gained by immersing herself so deeply into the final throes of her mother’s life.

Writing a memoir is exactly the opposite of the mental deterioration of dementia. By writing a story about taking care of someone with Alzheimer’s, O’Dell was exercising that part of her brain, the prefrontal cortex, that distinguishes humans from the other creatures on the planet. The very act of writing helps the writer cope, and once the story is written, it can be reread, reorganized, and shared. This organizational ability of the brain is the basis for much of what we consider sane and sacred about being human. While Carol O’Dell can’t erase her mother’s suffering or her own, she can write about it, choosing her words and phrases and images. These simple tools let her organize events into a story. And through this process she can reclaim some of the humanity that was lost and offer it to us as a gift.

More memoir writing resources

To see brief descriptions and links to all the essays on Memory Writers Network, click here.

To order my step-by-step how-to guide to write your memoir, click here.

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To improve your memoir, break down the code

by Jerry Waxler

My dad owned a neighborhood drugstore in north Philadelphia, and on the nights he was able to make it home for dinner, most of the conversation centered around him telling us about the menagerie of characters who streamed through the store and gave him endless raw material. We sat and dutifully listened, but since there was no rule about equal air time, I grew up without having picked up even a smattering of skill to help me tell stories of my own.

In fact, I spent quite the next several decades story-less, feeling awkward about reporting on what happened to me. And though I didn’t realize it at first, I gradually noticed that my lack of storytelling was cutting me off from people. Stories are how we tell each other who we are, and so without stories, I felt isolated. Once I noticed how important it was to be able to tell stories, I set out to learn in adulthood what I had not learned as a child.

It turns out that with a little digging you can find storytellers who will teach you their craft. For example, Charles Kiernan, coordinator of the Lehigh Valley Storytelling Guild, has been studying story telling for years. For him, storytelling is a performance art. He looks like Mark Twain, including the flowing mane of hair and bushy mustache, and when he dresses in period costume, it’s like listening to your own copy of Mark Twain. In addition to the performance and folklore aspects of storytelling, he’s also interested in creating them.

Here’s the simple, powerful lesson he shared with me, that he’ll be teaching in more detail at the Augusta Heritage Folkarts Festival in West Virginia, July 8-13, 2007. Say you’re sitting around at a family gathering, and the older adults start telling stories about Uncle Bob. The ones who knew Uncle Bob start laughing, and everyone else glazes over. They never met Uncle Bob, they didn’t know his pranks, or the sadness underneath his smile, so the story isn’t working for them. The problem is that so many family stories contain codes. The people who know the code can make sense of the story, and those who don’t know the code are left out.

It’s like that old joke about a newly convicted criminal in the penitentiary. Someone down the cellblock screams out the number “68″ and all the other prisoners crack up laughing. The newbie asks what is going on, and his cellmate says, “We’ve heard these jokes so many times, we just tell them by the number.” It’s the same with family stories. As storyteller Charles Kiernan, coordinator of the Lehigh Valley Storytelling Guild, explains it, say you’re at the dinner table celebrating a holiday with your extended family. You start telling stories about Uncle Bob, and all the adults who knew Uncle Bob crack up, while the kids who don’t remember Uncle Bob glaze over. Why are they staring at the ceiling, waiting for an excuse to get away from the table?

Kiernan’s family-oriented workshop will teach students to slow down and instead of telling stories in code that only insiders understand, they’ll learn to tell the story in a way that can be understood by listeners who never met Uncle Bob. The trick is to describe him in more detail. What did he wear? What was his hair like? What room do you picture him in? Sit down with someone who didn’t know him and describe him in as much detail as possible, so your listener could pick Bob out of a crowd.

If you want to tell a story, look closely at your language, and “unpack” it, laying out its content for everyone to appreciate. With a little learning you can turn the joke known only to the old inmates into a joke you can share with kids and strangers.

While this advice sounds simple, I consider it to be brilliant. For one thing, it acknowledges an important fact. Just because we think we’re telling a good story doesn’t mean the listener is hearing a good story. That in itself is a powerful piece of information, because most of us think that when we tell about events, we are doing the best possible job sharing the story. It turns out, the storyteller plays a crucial role, shaping a bunch of events into something worth listening to. Once we realize this fact, we can start looking for tricks to give our stories more impact.

Secondly, the message is brilliant because it is extraordinarily fundamental, sweeping across all aspects of storytelling. For example, I was preparing to write a description of my years in college, and was hoping to explain how the music of the times influenced my feelings. I could hope that by simply mentioning that the Beatles were intense or important, I might be able to convey what I was feeling, since everyone really knows about the Beatles. But I remembered Kiernan’s advice about avoiding code words, and thought how that applies to those icons of the sixties. If I just mention the word, “sixties” or “Beatles” I might hope everyone understands what I mean. But they will only get what they think, not what I think. That’s like the prisoner saying “68.” I have to tell a story.

So how can I unpack my thoughts and feelings about the Beatles? I’ll talk more about that in my next blog entry, and put into a scene what I mean by the coded word “Beatles.”

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Boomer memoir is a step towards social activism

by Jerry Waxler

Terrorism! Melting ice caps! Another traffic jam! When is someone going to do something about this mess? While I am waiting for “them” to change the world, “they” are waiting for me. It’s time to break this impasse by taking action. But how? I already tried to bring about world peace by disrupting a campus when I was in college in 1968. It was scary confronting a mob of police, and I don’t believe the world has become more peaceful as a result of those actions. Now that I’m older, I’m looking for better methods. I recently became inspired by a talk hosted by the “Coming of Age” organization in Philadelphia. The main speaker was the CEO of AARP, Bill Novelli, who echoed the sentiment of his book, 50+: Igniting a Revolution to Reinvent America in which he claimed that I can join an army of new oldsters to help move the world in a positive direction. A week later I went to another Coming of Age event and heard similar ideas eloquently delivered by Marc Freedman, author of Prime Time: How Baby Boomers Will Revolutionize Retirement and Transform America.

When I was a kid, I thought that older people were the problem. They seemed so invested in the status quo. Now that I’m one of them, I find old people aren’t so bad after all. In fact, I feel just as passionate about changing the world as when I was 20. While Novelli and Freedman spoke of a variety of ways that others have chosen to pitch in and move their own little corner of the world, I have a grand idea. It seems to me that the missing element in modern civilization is that we don’t seem to be doing a good job of learning from our mistakes. And in my opinion, that’s where the army of us oldsters can help significantly. We’ve seen the world go by for more years than others have, and have gained an appreciation for what matters in the long run, and what fizzles out.

It’s not that I have all the answers. But if there is any wisdom at all to be gained from experience, and my experience tells me there is, then I’d say we need to communicate more of our life story. And we’ve been born at the perfect time. Just as boomers are reaching “that certain age” technology has provided new opportunities for us to collaborate. The printing press brought ideas from individual minds out into the public, broke us free from a layer of oppression, and opened the way for the Renaissance. The internet makes the printing press look like an old relic. We’re ready to take this thing global, and who knows what rebirths we can bring about?

By developing a community of thinking people who talk about life in an inquiring way, we can learn from each other. Your wisdom is contained in your life experience. Share it with the world! Even if you don’t know how writing could change your world, start writing anyway. Your experience turns into stories that are authentic, in a voice that is authentically yours. That’s all that matters now. Find the authentic voice and share the authentic experience. As you go, you’ll discover the sense you’ve made of your past, and then discover the impact your experience has on others. By writing and organizing your story, without even knowing how, you are already beginning to serve. And like any service to others, you’ll be the first to reap the rewards.

Writing about life will give you more energy. Even if you already have plenty of energy, writing will give you more. And if you are too tired to write, writing will wake you up.

Writing will make you more knowledgeable about how to write and how to tell stories. You can press these enhanced skills into service as you discover things you want to share with the world.

By writing about your own life experience, you open up parts of yourself to others. This makes the world a friendlier, more intimate place to live.

Write for a cause, write for a community, write for posterity, write to share yourself. Write to change the world.

More memoir writing resources

To see brief descriptions and links to all the essays on Memory Writers Network, click here.

To order my short, step-by-step how-to guide to write your memoir, click here.

To learn about my 200 page workbook about overcoming psychological blocks to writing, click here.

Check out the programs and resources at the National Association of Memoir Writers

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Why so many memoirs of dysfunctional childhood?

 by Jerry Waxler

In searching through bookstores and bestseller lists, I find many memoirs whose central feature is the quirkiness and pain of dysfunctional childhood. For example,

Glass Castle, Jeanette Walls
Angela’s Ashes, Frank McCourt
This Boy’s Life, Tobias Wolff

In fact, so many big sellers seem to center on strange childhood, I have been wondering if all of us should be writing about dysfunctional childhoods, or should we feel somehow inadequate if we didn’t have one. To answer this question I have been speculating about some of the reasons this theme of painful early life has caught the attention of so many readers and publishers.

Follow the money
One reason there are successful dysfunctional childhood stories is the success of Frank McCourt’s Angela’s Ashes. The publishing business follows trends. So they are looking for other books in a similar vein.

Easy for the reader to jump into the protagonist’s shoes
Any vulnerability and danger, puts us on the edge of our seats. Children are vulnerable, so a story about a dysfunctional childhood has a natural hook that pulls readers in. We want the child to be safe, and feel concerned at their crazy parents and excess freedom.

Watch in voyeuristic horror
Protecting kids seems like a basic contract all parents are supposed to sign up for. And when it breaks down, we feel horrified. Like onlookers at an accident, our disgust draws us on to the next page. We watch in horror as kids cope with parents who disobey the rules.

Revel in the entertaining surprises
The quirkiness of a dysfunctional childhood is simply more entertaining and surprising than a normal one. These surprises and shocks keep us reading.

They offer hope
If they suffered this much and survived (enough to be able to write this book), then there’s hope for the world. Resilience of individuals gives hope for resilience for the rest of us.

Someone had it worse than me
Many of us think we had difficulties in our childhood. These books are testimony to the fact that other people also had it bad, or in most cases significantly worse.

The family unit rules
The family is a unit that is precious and powerful, a crucible of human experience in which we were formed. Parents and extended family feed, clothe, teach, guide, punish, demand, coax, love, or not. Siblings stick together or not. Memoirs of extreme cases help us piece together a deeper understanding of this unit and give us glimpses of how it worked in our own life.

Solve a puzzle: Is it nature or nurture?

For years we have heard endless debates about the impact of nature versus nurture. Did they grow to be good people because of their childhood or despite it? It’s a fascinating question, and we hope that this one book, this one person’s experience will help us settle this unsolvable debate once and for all.

Solve a puzzle: where is the love?
As I read these books I easily see the dysfunction. But in the back of my mind, I feel like I’m reading a detective story. I know there must be love in this situation somewhere, but where? My curiosity to find the love draws me on.

Putting words on our pre-verbal times

We all started childhood before we could put words on our experience. Then gradually we found words, but it took years before we could eloquently advocate for ourselves or explain our world. Our unformed voice was a sort of muteness. Reading someone’s story of that period gives us words.

Learn about coming of age
Coming of age is a universal experience. We all went through it, but we don’t necessarily understand it. Reading about how it worked for other people helps us sort out our own coming of age.

Surviving great suffering indicates greatness
We don’t all win a Nobel prize, or an Olympic gold medal. But one thing we did all do is survive childhood. If faced adversity in childhood, now you have overcome that adversity — the greater the difficulty, the greater the achievement of having survived it. So when we read a story about someone who survived a difficult childhood, we are actually reading the story of a champion. And readers like champions.

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Truth, Lies, and Memories

by Jerry Waxler

I’ve been transcribing recorded interviews from a digital recorder recently. I listen to the tape, and type it into my document, and if I miss something, which is often, I go back and listen to it again. I’ve noticed a peculiar thing about this project. As I listen and type, I often get the words wrong. I remember the sense of what they said, but I misremember the word choices only seconds after I hear them.

That calls into doubt the truth of any conversation I try to repeat. If I try to write some dialog, say from a year ago, or ten or twenty, I’m certain to get the words “wrong.” Does that make me a liar? Or more relevant to the topic of memoirs, does it make it fictional?

The fact is it’s difficult to remember conversations verbatim, and probably very few of us do it. It’s even harder to remember colors. In fact, two people can be sitting in front of a painting, and each will have a different set of words to describe the painting. Words only capture the best approximation of a thing, not the thing itself.

My mother and her sister would often get into arguments over how their childhood worked. I never really understood the nuances of their arguments – they were both too edgy about it to explain it clearly, but it had something to do with whether their childhood was happy. Their differences in memory certainly had something to do with the fact that they were seven years apart, so they grew up almost in different decades. A lot can happen in those seven years, and their experience could have been very different because of the changes in the world, and in their parents. And they had very different siblings. One had a sister seven years her elder and the other had a sister seven years her junior. I believe we all tend to underestimate the effect our siblings have on us. They are children, just like us, but their presence creates an important part of our environment. They indeed have different memories. Does that make either one true and the other false?

In my opinion, each has the right to remember her own story. Memoir writing is about our best memory, and if you hold yourself to some artificial standard of pure Truth, you’ll never be able to sit down and write. Memoir writing is story telling. If repeating dialog makes it a good story, it doesn’t matter to me as a reader if that differs from the actual dialog.

I just started reading the memoir “Invisible Wall” by Harry Bernstein. He begins with a scene he remembers from when he was 4 years old. He was 93 when he wrote it. That makes the memory 89 years old. I’m sure there are details in his account that are different from the events that actually took place. But I am thrilled to be reading the story that Bernstein tells, I am willing to suspend my concerns about truth of events decades ago, in exchange for the pleasure of the living, vibrant reality of Bernstein’s story of those events. Thank you Mr. Bernstein, and all you budding memoirists in the world, for sharing your story.

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